There’s a good chance you’ve never heard of Loeys-Dietz syndrome. This rare disorder preys on the flexibility and strength of connective tissues affecting muscles, ligaments, blood vessels and bones. It’s a nasty syndrome that unfortunately manifests in aortic aneurysms, often in children.
The Butterfly Swamp 5K is a brand new fun run dedicated to funding awareness and research of Loeys-Dietz syndrome. This informal race will take place on the campus of UALR at 9:30 a.m. Saturday, May 2. The event will be full of food, fun and family-friendly activities for all.
Deborah Palludan is behind the 5K. She decided to make a difference for future families after losing both her daughter, Katherine, 21, and son, Ryan, 18, to Loeys-Dietz syndrome only a year apart.
As for the theme, the “butterfly” part comes from an experience Katherine had with butterflies during her last weeks, while the “swamp” portion comes from Ryan’s fierce loyalty to the Florida Gators. Runners are encouraged to dress in whatever creative Butterfly Swamp ways come to mind.
Proceeds from the Butterfly Swamp 5K will go to The Katherine and Ryan Palludan Memorial Organization’s Book Award Scholarship and research into the disorder.
“Katherine and Ryan both had full scholarships to attend UALR and we would like to help other young people attend college so they can fulfill their dreams and goals and realize that they can reach for the stars,” Deborah Palludan said on the event’s Facebook page. “We hope you join us in this endeavor and have fun at the same time.”
Find out more about the Butterfly Swamp 5K by clicking here, and register here. To learn more about Loeys-Dietz syndrome, click here.